Mowat-Wilson syndrome (MWS) is a rare genetic disorder that affects many systems of the body. Some of the main features include intellectual disability, distinctive facial features, and delayed development. You may be wondering why I am writing these facts on this random disorder, but that’s the thing; it is not just some random disorder to me. My little cousin, Nolan, was born with MWS. He is 18 months old and he is just the sweetest human being on earth. I have never been around a more loving child in my almost 22 years of being alive, and I am so blessed that he is a part of my family. His smile and his laugh can make the worst of days turn completely around. When I see his mom post a new milestone on Facebook, I come to tears because of how happy and proud I am. A few days ago, he was able to hold himself up in a standing position for the first time. To this, many people would say “that’s not normal”. What we have learned as a family is that it is his normal. It is small to you and big to us. Nolan continues to improve every single day showing us that his abilities outweigh his disabilities. He has physical therapy every week and he is so strong willed! We have so much faith in him and we know he will be walking in the blink of an eye! Below I have added some photos of our sweet Nolan. I have no doubt that if you knew him, you would fall in love just as I have and you could then say proudly, #ilovesomeonerare.
**Because MWS is so rare, there is not a lot of funding for research. If you are willing and able, you can donate to the cause here.